Why we collect and submit patient data
Current cancer statistics are crucial for successful cancer research. That is why if you are treated for cancer at Pardee, our Cancer Registry program will collect and submit some of your health information to state and national databases. For privacy, we do not include your name when we submit your health information. We hope that by collecting and submitting this information, we can aid in research to find a cure for cancer.
We keep your information strictly confidential as mandated by the State of North Carolina and the bylaws of Pardee Hospital. We also comply with HIPAA regulations.
In most states, hospitals are required by law to submit data on their patients with cancer, as well as other diseases and conditions. There is also data in the registry on certain non-cancerous tumors, such as benign brain tumors.
The information we collect
We collect and submit the following information to state and national databases:
Your family history
Your social history
Your occupational history
The location of your tumor
The cell type of your tumor
Your stage at the time of diagnosis
The treatment you received
Your current status
Who uses the data?
We submit data on an annual basis to the National Cancer Data Base (NCDB) and on a monthly basis to the North Carolina Central Cancer Registry. Other hospitals throughout the country also submit this information so researchers have complete, accurate data to work with in determining incidence and mortality rates, as well as in planning clinical trials and other research.
Lifetime follow-up with cancer survivors
Our Cancer Registry program is also responsible for your lifetime follow-up. If you are in our cancer patient database, someone from our team will follow up with you once a year for the rest of your life. He or she may:
We are required to have current follow-up on at least 90 percent of our patients. This information helps statisticians to determine how patients live with certain stages of cancer and serves as a reminder for you to schedule check-ups on a routine basis.